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PDtrials : ウィキペディア英語版
PDtrials
PDtrials is an initiative to increase education and awareness about Parkinson's disease clinical research. The initiative is led by the Parkinson's Disease Foundation, and involves a collaboration between a number of Parkinson's organizations in the U.S. The main objective of PDtrials is to provide information to help people with Parkinson's disease learn more and make informed decisions about participating in clinical studies. PDtrials works to accomplish this goal through the (www.pdtrials.org ) website and other educational materials.
PDtrials aims to address the lack of awareness about clinical research in the Parkinson’s community, and increase participation. Currently, less than 10 percent of doctors discuss trials with their patients, and less than one percent of people with Parkinson's disease actually participate in clinical research studies.〔http://www.parkinsonsaction.org/Survey-Says-Patients-not-Referred-to-Clinical-Trials.html〕 To increase awareness and participation, the PDtrials website lists Parkinson’s clinical trials currently seeking participants throughout the US and Canada and posts news articles on current Parkinson’s clinical research findings.
==Clinical Trials Search==
The central component of the PDtrials initiative is its clinical trials search engine. Through the service, people can search for specific Parkinson’s clinical trials using criteria such as location, trial type, symptom, and keyword. The site also allows people with Parkinson's disease to browse all posted clinical trials.〔http://www.pdtrials.org/en/about_PDtrials_what〕
Two types of trials featured prominently on the PDtrials site are those for people who have been newly diagnosed with Parkinson's and have not yet started taking medications, and for people who are family members of someone living with Parkinson's. Many of the newly diagnosed trials focus on neuroprotection and involve testing whether a certain compound offers protection to dopamine-producing cells in order to slow or stop the development of Parkinson's. Many of the trials for family members are studies that enroll both people with Parkinson's and their immediate family members in order to learn more about the genetic factors which influence the disease.〔http://www.bu.edu/genepd/〕

抄文引用元・出典: フリー百科事典『 ウィキペディア(Wikipedia)
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